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NoTube Eating school day 5 (chapter 2)
We didn’t have to wake up Elodie today, she woke up after hearing our noise while we were preparing for the day. She even had a few minutes left to snooze. She didn’t eat much in the morning. But ate some ice cream and new foods. We have noticed…
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NoTube Eating school day 4 (chapter 2)
Elodie woke up by herself when she heard me walking around. I guess she is getting used to the new daily routine. At home, we chill in bed for a while after waking up, so she wasn’t eager to get up. She seemed more interested in going to the…
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NoTube Eating school day 3 (chapter 2)
Every morning upon arrival our temperature is checked, and we are asked how we are feeling as a way to prevent Covid-19 infections. The hygiene rules were already quite strict, but now even more, face shield or mouth mask on, and washing hands more than 5 times a day.…
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NoTube Eating school day 2 (chapter 2)
We had to wake up Elodie this morning, as was expected. She wasn’t that eager to wake up. We let her sleep as long as possible and then rushed to NoTube. It’s only a 7-minute walk, and luckily we get breakfast there. During breakfast, we had to put white…
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NoTube Eating school day 1 (chapter 2)
No therapy or medical professional in the Netherlands could help Elodie learn to eat. In fact, they made matters worse. NoTube’s multidisciplinary team with pediatricians, speech therapists, psychotherapists, psychologists, dieticians, nurses, etc. who have solely been helping children to tube wean and learn to eat (for over 30 years),…
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Elodie 24-30 months: autonomy and recovery
After everything that’s happened in Elodie’s second year, we tried to reduce the attention the topic of “feeding” gets. It was extremely difficult, because with a BMI of 12 (extremely malnourished) at the beginning of the year it was impossible to let go. She had no body fat or…
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Elodie 12-24 months: starvation mode, infantile anorexia, PPD & PTSD
After Elodie’s first year (where we started encountering feeding issues), at her first birthday she wouldn’t drink from the bottle anymore. Until then, we were still dream feeding her. Gradually it took 1.5 hour for her to just drink 40cc and then it diminished to just 20cc. The past…
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NoTube Eating school day 12
Today is the last day of the NoTube eating school. We woke up feeling a little bit sad already. The team and families have worked so hard to make it happen, supporting the families, helping the children. Within 2 weeks you become close to the team and some of…
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NoTube Eating school day 11
Our NoTube stay is coming to an end. We don’t want to go home! It’s so nice being here with the team looking after us, and being together with the other families. Until Sunday most families were still a bit stressed and tense, but on Monday the weights of…
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NoTube Eating school day 10
The days go by too fast, only two days to go! We don’t want to go home yet. It’s so nice to be there as a family, being around people who understand your problems, and not having to think about cooking and cleaning. The children are happy and playing…
