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Elodie 3.5 – 4 years old: sick, viruses, throat infections etc
We haven’t experienced such a bad, exhausting, draining, dark period in a long time. These six months are so hazy in my memory, it was plain survival mode. It made us realise that after our first NoTube eating school our life started to become increasingly ‘normal’. After around 9…
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Today was a good day <3
We went to the Tilburgse Kermis today and for dinner Elodie choose KFC over some burger restaurant. When we wanted to go outside with our order she pointed out that she wanted to take a seat. We were surprised because initially she was in a hurry to go to…
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Elodie 3 – 3.5 years old: Lots of progress, day care and flu’s.
The new year started really well! Elodie was eating, at least, around 800 calories a day on her own. We could see progress almost daily. Eating new foods, bigger amounts, asking for food, telling us she is hungry and saying that she loves eating and loves food. Even though…
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Why we choose NoTube
After the hospitalization in the MMC in Veldhoven, the Netherlands, Elodie’s 18 months old body was in survival mode, she ate and survived on very little food and she was failing to thrive, and severely underweight. The extreme hunger provocation that they did was detrimental for her health and…
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The impact of the flu on a child with an eating disorder (arfid)
Elodie started day care in April. After two days, where she only went a few hours, she got sick with a major throat infection. Oh my, this was the worst month in 2 years. The lack of sleep, miserable days, the feeling of not wanting to face the next…
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The relationship between malnutrition and teeth
What you don’t see behind her smile is that we have been taking her to the dentist every 2 or 3 weeks since last August, so 6 months of visits already. Elodie had multiple rounds of antibiotics when she was a newborn, and was severely malnourished, so her teeth…
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The continuing battle with local medics
Every time I go to our GP, doctor or any other medic here, I am so amazed by their incompetence in diagnosing and giving the proper treatment, their lack of empathy, professionalism, and arrogance. The ‘let’s sit this out, it’s nothing’ attitude. My head just hurts even thinking about…
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Elodie 2.5 – 3 years old: substantial eating improvements, NoTube Eating school, stability
Our family and my employer saw and heard the significant improvements Elodie had made the last few months since the NoTube Eating school. Most importantly, they saw the positive impact it had on us as a family and our mental health. They offered to contribute for another NoTube Eat…
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The loneliness of special needs parents
The people in our lives—be they acquaintances, neighbours, teachers, doctors, friends, parents, family members—don’t really understand what it’s like to raise a child whose needs, and challenges are different from those of the average child. Unless they have walked the same path themselves. Social isolation:We don’t want to be…
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NoTube Eating school day 12 (chapter 2)
The last day. This eating school went really fast! Maybe because we were able to enjoy and appreciate it even more. We can look back and say that this time we can go back home without anxiety. We are okay on our own, and will continue to make steps.…
