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Elodie 3.5 – 4 years old: sick, viruses, throat infections etc
We haven’t experienced such a bad, exhausting, draining, dark period in a long time. These six months are so hazy in my memory, it was plain survival mode. It made us realise that after our first NoTube eating school our life started to become increasingly ‘normal’. After around 9…
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Elodie 3 – 3.5 years old: Lots of progress, day care and flu’s.
The new year started really well! Elodie was eating, at least, around 800 calories a day on her own. We could see progress almost daily. Eating new foods, bigger amounts, asking for food, telling us she is hungry and saying that she loves eating and loves food. Even though…
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Why we choose NoTube
After the hospitalization in the MMC in Veldhoven, the Netherlands, Elodie’s 18 months old body was in survival mode, she ate and survived on very little food and she was failing to thrive, and severely underweight. The extreme hunger provocation that they did was detrimental for her health and…
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The impact of the flu on a child with an eating disorder (arfid)
Elodie started day care in April. After two days, where she only went a few hours, she got sick with a major throat infection. Oh my, this was the worst month in 2 years. The lack of sleep, miserable days, the feeling of not wanting to face the next…
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The continuing battle with local medics
Every time I go to our GP, doctor or any other medic here, I am so amazed by their incompetence in diagnosing and giving the proper treatment, their lack of empathy, professionalism, and arrogance. The ‘let’s sit this out, it’s nothing’ attitude. My head just hurts even thinking about…
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Elodie 2.5 – 3 years old: substantial eating improvements, NoTube Eating school, stability
Our family and my employer saw and heard the significant improvements Elodie had made the last few months since the NoTube Eating school. Most importantly, they saw the positive impact it had on us as a family and our mental health. They offered to contribute for another NoTube Eat…
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The loneliness of special needs parents
The people in our lives—be they acquaintances, neighbours, teachers, doctors, friends, parents, family members—don’t really understand what it’s like to raise a child whose needs, and challenges are different from those of the average child. Unless they have walked the same path themselves. Social isolation:We don’t want to be…
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NoTube Eating school day 12 (chapter 2)
The last day. This eating school went really fast! Maybe because we were able to enjoy and appreciate it even more. We can look back and say that this time we can go back home without anxiety. We are okay on our own, and will continue to make steps.…
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NoTube Eating school day 11 (chapter 2)
One more day to go and then the eating school is finished already! This time we don’t feel the anxiety like we did last year. We have more confidence in ourselves and in Elodie. We have come a long way, and she has been making little steps. She has…
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NoTube Eating school day 10 (chapter 2)
We found out that Elodie’s molars are coming through. Which may explain why she is rather short-tempered the last few days. Elodie woke up quite often last night, so it was difficult to get her out of bed this morning. I sounded the alarm for 5 minutes, but she…
