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NoTube Eating school day 3 (chapter 2)
Every morning upon arrival our temperature is checked, and we are asked how we are feeling as a way to prevent Covid-19 infections. The hygiene rules were already quite strict, but now even more, face shield or mouth mask on, and washing hands more than 5 times a day.…
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NoTube Eating school day 2 (chapter 2)
We had to wake up Elodie this morning, as was expected. She wasn’t that eager to wake up. We let her sleep as long as possible and then rushed to NoTube. It’s only a 7-minute walk, and luckily we get breakfast there. During breakfast, we had to put white…
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NoTube Eating school day 1 (chapter 2)
No therapy or medical professional in the Netherlands could help Elodie learn to eat. In fact, they made matters worse. NoTube’s multidisciplinary team with pediatricians, speech therapists, psychotherapists, psychologists, dieticians, nurses, etc. who have solely been helping children to tube wean and learn to eat (for over 30 years),…
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NoTube Eating school day 12
Today is the last day of the NoTube eating school. We woke up feeling a little bit sad already. The team and families have worked so hard to make it happen, supporting the families, helping the children. Within 2 weeks you become close to the team and some of…
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NoTube Eating school day 11
Our NoTube stay is coming to an end. We don’t want to go home! It’s so nice being here with the team looking after us, and being together with the other families. Until Sunday most families were still a bit stressed and tense, but on Monday the weights of…
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NoTube Eating school day 10
The days go by too fast, only two days to go! We don’t want to go home yet. It’s so nice to be there as a family, being around people who understand your problems, and not having to think about cooking and cleaning. The children are happy and playing…
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NoTube Eating school day 9
Time flies! Only a couple of days to go and our NoTube EAT Campus adventure is finished. Luckily we still have a few months of aftercare. We wished that the treatment would be 4 weeks instead of 2. Elodie is having a lovely time here, playing with the other…
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Notube Eating school day 8
It was interesting to see how all parents were more relaxed today. As if the day off showed us that we can go out, have a fun day and everybody will survive. Most children also stabilized in weight, and they are making improvements. For many parents, including us, the…
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NoTube Eating school day 7
My husband went to the Augenklinik last night. Elodie accidentally scratched his eye. It hurt too much, yet he didn’t want to go to the hospital and wanted to sleep if off. Men. I wrote a message in the NoTube ticket system and Doctor Marguerite answered immediately, and told…
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NoTube Eating school day 6
Elodie weighs 9.7 kg today. My husband was at the medical round this time, and they put her up the scale twice to make sure it was correct. We couldn’t wait until the medical round to check her weight, so secretly we weigh her every day (in the office)…
