Today is the last day of the NoTube eating school. We woke up feeling a little bit sad already. The team and families have worked so hard to make it happen, supporting the families, helping the children. Within 2 weeks you become close to the team and some of…

Our NoTube stay is coming to an end. We don’t want to go home! It’s so nice being here with the team looking after us, and being together with the other families. Until Sunday most families were still a bit stressed and tense, but on Monday the weights of…

The days go by too fast, only two days to go! We don’t want to go home yet. It’s so nice to be there as a family, being around people who understand your problems, and not having to think about cooking and cleaning. The children are happy and playing…

Time flies! Only a couple of days to go and our NoTube EAT Campus adventure is finished. Luckily we still have a few months of aftercare. We wished that the treatment would be 4 weeks instead of 2. Elodie is having a lovely time here, playing with the other…

It was interesting to see how all parents were more relaxed today. As if the day off showed us that we can go out, have a fun day and everybody will survive. Most children also stabilized in weight, and they are making improvements. For many parents, including us, the…

My husband went to the Augenklinik last night. Elodie accidentally scratched his eye. It hurt too much, yet he didn’t want to go to the hospital and wanted to sleep if off. Men. I wrote a message in the NoTube ticket system and Doctor Marguerite answered immediately, and told…

Elodie weighs 9.7 kg today. My husband was at the medical round this time, and they put her up the scale twice to make sure it was correct. We couldn’t wait until the medical round to check her weight, so secretly we weigh her every day (in the office)…

Elodie’s weight dropped from 9.9 kg on Wednesday to 9.5 kg today. They are weighing with clothes on, so she is actually weighing even less. At home, she was 9.9 kg without clothes on in the morning. Luckily the doctor told us to give her a bit more food,…

Elodie didn’t eat that much unfortunately. The confidence we had in her yesterday subdued pretty quickly. Seeing her being thinner doesn’t feel good, I have put so much effort in those kilograms. The days tire her out because she explores a lot, plays with the other children, yet her…